Driving through the orchard, watching the leaves shimmer and fall, I came to understand something that brought me peace. Much of my life as a mother, advocate, and chaplain has been shaped by routines ...

Columnist G Shellye Horowitz applied the advocacy she learned on her hemophilia journey to get a new rare diagnosis. She ...

Data from a primate study suggested MGX-001 has potential as a hemophilia A treatment, moving the drug closer to clinical ...

Hemlibra (emicizumab-kxwh) safely supports joint health in children with hemophilia A without inhibitors through three years ...

Every woman with a bleeding disorder knows about doubt, writes columnist. But it's important to keep speaking out.

Columnist Jennifer Lynne talks to Connie Montgomery, who has factor VII deficiency, about her advocacy for women with bleeding disorders.

Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. Jennifer has strong ties to the bleeding disorder ...

Many women with hemophilia grew up being taught to downplay their symptoms, writes columnist. That is the wrong approach.

Biomarin Pharmaceutical is looking to sell off rights to Roctavian (valoctocogene roxaparvovec-rvox), its approved gene therapy for hemophilia A. “As we focus on the business units aligned with our ...

Geneventiv Therapeutics said it had a “positive and constructive” meeting with the U.S. Food and Drug Administration (FDA) on its plan to develop GENV-HEM, a gene therapy for hemophilia A. The meeting ...

MacDonald reflects on how much hemophilia care has changed and reminds her how much she has to be thankful for.

My husband, Jared, was 11 when hemophilia changed the course of his life. He wasn’t doing anything reckless — just being a boy, jumping around on his bed. Then came the misstep, the fall, the blow to ...