The main purpose of YARR is to instill confidence in the next generation of rare disease advocates. We want to ensure that young adults have a growing, diverse impact on public …

A major goal of the Young Adult Rare Representatives (YARR) program is to ensure that young adults have a growing impact on public policy in the rare space. This includes building …

Need a YARR speaker for your company’s Rare Giving supports individual rare disease patients and organizations that engage patients, caregivers, and others in the community in advocacy, …

Financial Support to the Community Carter Hemion Rare Advocate & YARR Member For more information about sponsorships and benefits, please contact a member of our team.

The YARR Program Manager provides support for the strategic priorities of the EveryLife Foundation for Rare Diseases’ patient engagement and YARR programming.

Jan 26, 2018 · 7 August 2023 YARR Leadership Academy Registration Open Virtual Find out more »

YARR is a program that empowers young adults aged 16-30 in the rare disease community to become confident, skilled advocates for public policy and patient engagement.

A major goal of the Young Adult Rare Representatives (YARR) is to ensure that young adults have a growing impact on public policy in the rare space. This includes building knowledge of …

A major goal of the Young Adult Rare Representatives (YARR) is to ensure that young adults have a growing impact on public policy in the rare space. This includes building knowledge of …

YARR Resource Guide - How should I prepare for an upcoming appointment? - EveryLife Foundation for Rare DiseasesIf this is your first visit with this provider, consider asking …